I can’t add to this. I’ve lived through this four times now and grateful that, at least some of the time, what I said and did, was the right thing.
This list comes from Kate Swaffer who after being diagnosed offers a fresh perspective on how to live beyond dementia rather than only die from it, and how family, friends and dementia care professionals can more positively support people post diagnosis to do this. She has lovingly challenged, advised, and counseled me quite a few times on my journey. We even launched a Q&A blog where we peppered each other with questions.
As a follow-up to my go-to strategies for family visits, I plucked a few key tips to consider and am listing my top ten:
- Don’t tell the person they are wrong.
- Don’t say “Remember when … “
- Don’t correct or challenge trivial things.
- Don’t assume they can’t understand you because they are silent.
- Don’t think they can’t communicate just because we can’t speak.
- Don’t talk about them to someone else in front of them.
- Don’t remind them of…
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They are good points. Many of them aren’t too difficult to follow. For me, the one thing that tried my patience was the repetition. It was like an endless irritation, a verbal tinnitus. I just hope what I did was good enough. Who knows?
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We can only do what we can do. Sounds trite… but it’s true. ❤
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